Aunt Kris came from Montana last Thursday to spend the weekend with us. She went home this Monday. It was a great visit. Aunt Kris and Annie spent a lot of time together, visiting, taking walks, hot tubbing, laughing, reading. It was a great splash of sunshine for all of us. Thanks, Kris.
It has been over a week since our last update. It has been a week of some ups and some downs, more up than down. The doctors continue to tinker with the medications with a mix of some improvements and a few side effects. The biggest challange last week has been pressure. It was running in the 140s to the 180s 10 days ago, so the pressure medicine was increased. It helped bring the pressure to the 120 to 140 range, but also made Annie very tired. She would get up in the morning and take her meds, and within an hour she would be very tired and would lay down and often sleep till 2 or 3 in the afternoon. And when she is sleeping so much it is really tough to get 3,000 calories. The pressure medicine has been changed twice since then, mixed results, a little bit more energy, but a bit higher pressure. Hopefully we are circling in on the right combination.
Ten days ago the big challange was to gain weight, to get a lot of calories every day. The good news is she is gaining weight, about 4 pounds since she started this campaign.
Her biggest pain issue is with her feet. It seems like the nerves in her feet may have been damaged during her surgery, or from medications. It feels like a fairly severe frost bite. So her feet ache most of the day and night. The only relief is rubbing and messaging her feet. Tylenol does not cut the pain. So we rub, we massage, and Annie keeps on keeping on. It will probably take a few months for this to resolve itself, but Annie has a great spirit, she is a tough cookie!
This week we have joined so many of you to offer our prayers up for baby Emma and her parents David and Lenni. Emma was born last week at only 25 weeks term. A 1-pound angel! Just a couple of days ago Emma was transfered to Children's hospital for an emergency surgery on her bowel. Her surgeon, Dr. Healey! the same one who did Annie's transplant. He is so much our hero. Emma is now in the infant intensive care unit at Children's, right next door to the pediatric intensive care unit where Annie spent 10 days. Jane and Annie stopped by this afternoon to see David, Lenni, and baby Emma. I ask all of you to focus your prayers for Emma and family. Let's storm heaven for them.
God bless each and every one of you. Thank you so much for lifting Annie up in prayers over the past month, months, years! Know that your prayers have been answered. God is so good. And thank you for joining us in praying for Emma.
Paul
"Trust in the Lord with all your heart, on your own intelligence rely not.
In all your ways be mindful of him, and He will make straight your paths."
-Proverbs 3:5-6
In all your ways be mindful of him, and He will make straight your paths."
-Proverbs 3:5-6
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