Amazing Grace: 4/1/2007 Sunday afternoon

Sunday, April 1, 2007

4/1/2007 Sunday afternoon

After another nurological episode last night about 8 pm, Annie has been stable since and doing well. She had a good night's sleep, and has been up much of the day. We spoke to a doctor this morning and it sounds like blood work indicates that her liver continues to recover from the rejection episode. They have changed her medications again, all part of a fairly complicated process to achieve a balance between the benifits and side effects of some powerful drugs. We understand this is all part of the post-transplant process. From the sounds of it, Annie will be in the hospital most of this week. We hope that she can be home by Easter, but we undersand we have to be patient right now.

We continue to feel very good about the medical care at Childrens, and are forever greatful for your prayers and support.

God Bless. Paul

"Trust in the Lord with all your heart, on your own intelligence rely not.
In all your ways be mindful of him, and He will make straight your paths."
-Proverbs 3:5-6

5 comments:

Anonymous said...: Hey Annie!
I just wanted to tell you that you are in my thoughts and prayers every day. I just got back from EXCEL and my favorite part by far was listening to Mary give your talk about prayer. It was so powerful and genuine and it really made me think about prayer in my life. I am hoping that I can see you soon!

Love,
Kate Whitlock; April 1, 2007 at 4:19 PM
bg said...: ++

still thinking of & praying for you Annie,
sounds like you're holding your own girl!!
way to go!! take care & God Bless..

==; April 1, 2007 at 5:43 PM
Anonymous said...: Hey Annie,
Just wanted to say that we are so pleased that you are doing well - but especially how proud we are of how your faith and courage has touched so many of our young people at HFK. Hang in there and we hope to see you soon.

God has done great things in you and obviously has great plans for your life! We continue to pray for you and your whole family.
David, Tracey, Laura, Will and Caitlin Yackley; April 2, 2007 at 12:53 AM
Anonymous said...: Hello! How are you??? Sounds like you are doing well! Just wanted to say that i love you tons and will talk to you soon!!!!!!
Lvoe alwayz N 4ever!!!!!
-M
(lil cuz) lol; April 2, 2007 at 6:55 AM
dcat said...: We are not giving up either Annie! :) More prayers coming in...; April 2, 2007 at 12:25 PM

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Annie's Witness

When I was born, I was diagnosed with a disease called Alagille syndrome. This disease affected my heart, kidneys, and liver. My heart valve didn’t work right so when I was just over a year old I had a surgery to repair it. When the doctors did that they also discovered that the arteries going from my heart to my lungs were constricted. So over the past 15 years I have had several surgeries to attempt to improve my flow. Just this past September, while I was in the hospital with liver problems, they did a more aggressive procedure and for the first time I had near normal flow from my heart. That heart procedure was a bit of a miracle, because if it had not been successful I would not have been eligible for a liver transplant.My liver has caused me the most problems since I was born. Because it has not functioned normally, I have had brittle bones, been constantly itchy, tired, run down, and I had trouble growing. I had scabs all over my body from the itching. And I had these bumps or deformations on my elbows. I have yellow skin and yellow eyes from the bile that is in my liver. I remember when I went to kindergarten when I was 5, and was worried that the kids were going to make fun for the yellow skin and eyes, for the scabs and the bumps, and that they would not accept me. That is another great story – the kids and teachers at Holy Family were very understanding and supportive. The love I felt there was amazing. I had such great friends and teachers, and I felt so accepted and loved. About a year ago my liver really started to shut down. I started being more tired and run down, and by last September I was unable to go to school I was so tired. I ended up in the hospital a couple of times in September and October. I only went to Bishop Blanchet a couple of days in September and since then I have been home. I was heartbroken that I wasn’t going to be able to go back to school and finish my senior year. But I knew in my heart that God had a plan for me, I don’t know what it is, but I trust that it will be for the greater good. Knowing that helps me when I realize I can’t go back to high school. Right now I am on a waiting list for a liver transplant. In order to get better I need a new liver because there is nothing the doctors can do to repair mine.One thing I have done since I was a little is to pray. You might find this a bit funny, but I have not really prayed to God for my own healing. It didn’t seem right for me to pray for myself because I thought it would be selfish. I saw more people that I thought needed the prayer more than me. I learned very young I could offer up my prayer and my suffering for others. For example, when I was in 2nd grade I had to start taking shots. Initially it was twice a week, and then it was every day. The shots hurt me a lot and I remember how painful they were. Then I started offering up my shots for others in need. Each night before my shot I would say a prayer and then offer it up for someone in need. Offering up my shots didn’t take away the pain or the fear, but it did help me to bring some good out of it. I believe that offering up my pain to God was a strong and helpful prayer for others.Now that I have been cooped up at home since last September, I offer up every day for people in need. I have offered it up for my family members and friends. And it seems that the more I pray for them the more people I see who are in need of prayer.I have learned that God can use everything for the good, even sickness. I am actually grateful for the struggles because it has brought so much good in my life. I have been surrounded by some really great friends and supported by their love. Being sick all my life, it would be easy to think that I would become depressed and down. But that is not the case. I have much joy and peace and I am filled with happiness. I have strength to continue on each day. I know this is all a gift from God, a grace. I have felt God in my life from when I was very young. I have experienced many small miracles where he has touched my life and healed me physically or given me peace, joy and strength in the midst of struggles. God has been at my side and is still at my side. All of us have struggles in our lives. It is not always poor health like I have had. It might be struggles within your family, it might be personal addictions, or it might be worries over someone close to you. But it is important to know that God is by your side just like he has been by my side. I have found that I need to trust God; I need to turn to him in prayer in order to be able to know that he is by my side. I think God wants us to turn to him in our troubles; he wants us to take a step towards him through prayer. And when we do take a little step towards God, he takes a big step towards us and picks us up and holds us in his arms and blesses us with his grace. If I could give you any advice it would be this. Turn to God. Reach out to him in prayer. Share your troubles with Him. And trust him that he will help you. And don’t be disappointed if he doesn’t answer you the way you want. In the long run his answer will be better than you could have asked for. If he had healed me completely when I was two years old, or ten years old, I would not be the person I am today. I would not be as close to him, I would not be filled with so many of his gifts. I am ever so grateful to God for all he as done for me. And I know that what he wants for me is good, I just have to learn to put my trust in him and I know he will take care of me.

Amazing Grace

Sunday, April 1, 2007

4/1/2007 Sunday afternoon

5 comments:

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